Balneotherapy for
Progressive Systemic Sclerosis
Material and Methods
We addressed the members of
scleroderma-self-help-groups in West-Germany and
succeeded to get the replies of 411 patients for
evaluation, 110 of them had only circumscribed
scleroderma (CS)
Table 1 The most
frequent complaints of 411 patients with scleroderma.
See text for details.
| 1.) |
Deterioration in the
patients general condition (physical and
psychological)
|
51.3% |
| 2.) |
Deterioration in the
patient's general physical strength
|
59.8% |
| 3.) |
Sensitivity in cold
|
78.6% |
| 4.) |
Numbness of fingers
(Raynaud's phenomenon)
|
66.4% |
| 5.) |
Feeling of tension in
the skin
|
49.5% |
| 6.) |
Aclerema
|
45.0% |
| 7.) |
Arthralgie
|
46.3% |
| 8.) |
Myalgie
|
34.4% |
| 9.) |
Morning Stiffness
|
39.3% |
| 10.) |
Limited flexibility of
joints
|
45.2% |
| 11.) |
Xerosis
|
47.2% |
| 12) |
Microstomia
|
34.6% |
| 13.) |
Rigidity of joints
|
30.6% |
| 14.) |
Skin lesions and ulcers
|
29.7% |
| 15.) |
Cutaneous swelling
|
29.0% |
| 16.) |
Sclerema and
contraction of the frenulum
|
28.6% |
| 17.) |
Dyspnea
|
25.1% |
|
*Prof.
Dr. med. M. Buhring, Krankenhaus Moabit, IV,
Innere Abteilung (Naturheilweisen), Turmstr. 21,
D-10559 Berlin, Germany
|
In table 2 you see the different kinds of
balneotherapy that were assessed. At the same time you
find the number of responders. Mud and sulphur were
ordered most by the doctors and these classic agents
were rated best by the patients, especially regarding
"sensitivity to cold", which was complained
above all.
Table 2: Subjective
rating of different treatments regarding different
complaints (see table 1). n stands for the number of
treated patients. The percentage of responders
("good" and "very good") is
mentioned.
| |
n |
Well being |
Phys.
Strength |
Sensit.
cold |
Scler.
skin |
Pain |
Stiffness |
x |
| Mud |
56 |
39 |
33 |
21 |
19 |
23 |
24 |
26.5 |
| Sulphur |
56 |
50 |
33 |
23 |
18 |
16 |
16 |
26.6 |
| Brine |
35 |
26 |
13 |
4 |
17 |
13 |
9 |
13.7 |
| CoČ |
32 |
20 |
15 |
4 |
5 |
0 |
0 |
7.3 |
| Radon |
19 |
24 |
19 |
6 |
16 |
25 |
14 |
17.3 |
| Phyto-Baln |
31 |
38 |
36 |
23 |
12 |
18 |
12 |
23.2 |
| Hyperthermia |
55 |
47 |
45 |
26 |
17 |
37 |
32 |
34.0 |
Table 3: Subjective
rating of different kinds of drug therapies, physical
therapies and mud/sulphur baths regarding different
complaints. (See table 1; details of the therapeutic
procedure see text.) See also text for table 2
|
|
n
|
well
being
|
Phys.
Strength
|
Sensit.
cold
|
scler.
Skin
|
Pain
|
Stiffining
|
x
|
|
Pharmacother.
|
562
|
21
|
17
|
9
|
14
|
14
|
15
|
15.0
|
|
Physical Therapy
|
933
|
39
|
32
|
15
|
21
|
23
|
20
|
25.0
|
|
Mud, Sulphur
|
112
|
44
|
33
|
22
|
18
|
19
|
20
|
26.0
|
2nd Symposium...Sulfur in Health Resort
Medicine, Bad Nenndorf, May 1994
Discussion
The present study has severe methodical
deficiencies.
First, it is a retrospective survey, based on
subjective data. There is no control group, no
stratification, and the patients were neither clinically
examined nor the disease objectively staged in a
standardized manner as part of the study design.
Therefore bias are possible in the way that severely
sick patients with a poor prognosis might be primarily
treated with drugs, while patients with limited disease
with physical or balneological therapies (they still
could visit a spa). so the good results could depend on
the naturally better earlier stages in the course of the
illness. The possible mistake may be less serious
comparing physical and balneological treatments
exclusively.
To defend
our approach one can point out that we put our attention
above all to the patients with 'strong' and 'very
strong' complaints, even if the statements were
subjective. patients suffering from a prolonged, very
impairing chronic disease like PSS are able to give a
reliable evidence by themselves of their health state in
general and in detail, what means a judgement of their
quality of life.
As a first step of investigation on this
field, the present research made it possible to produce
such an extensive data base about treatment effects on
syndromes of PSS by a large number of patients. There
does not yet exist a comparable publication.
Second, this study has a lack of
differentiation within the therapeutic procedures. In
sulphur baths e.g., we know neither detail of the
substance actually used (sulphide-sulphur in spa-water
or colloid sulphur in family baths), nor the frequency
or duration of the applications. With a total of already
96 treatments mentioned and 22 symptoms characterizing
the degree of illness further subdivision or detailed
description would have passed the upper limit of a
questionnaire, to be filled in and worked out by
anybody.
But, the
remarkable effectiveness of mud and sulphur baths does
correspond to the overall balneological experience and
already described in the ancient and classical
literature.
As to carbon dioxide baths, we think that
they were ordered for theoretic considerations on their
mechanism of stimulating the vasomotricity strongly and
consecutively causing cutaneous hyperaemia. The commonly
low temperature in COČ baths might have been of
disadvantage and explain the poor results,
where
as in the contrary the commonly high temperature of mud
baths might be one reason for the outstanding benefit
the patients reported. In this context we also interpret
the very good rating of hyperthermia.
This preliminary study supplies a good deal
of orienting data that lead to further research.
|